Jenny ([info]jenny_evergreen) wrote,
@ 2007-09-12 16:34:00
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Current mood: sore
Entry tags:invisible illness week, my health

Invisible Illness Week
My friends tell me that it's Invisible Illness Week.
I have benign joint hypermobility syndrome, which means my ligaments are all loose. Since the ligaments are what hold your bones snug against each other, you can see how this could be a problem. My cartilage takes a hell of a beating. I had one moment in the last I-don't-know-how-many-years where nothing hurt. It was amazing. As I sit here right now, my shoulders, neck, knees and jaw (TMG) hurt the most. Other times, it's other joints. But I am always and ever hurting.
I also (probably related) have GERD, which has played havoc with my eating habits most of my life. Nowadays, I have it reasonably under control. I'm also no longer nauseous every day. Just some days.
I have some pretty serious anxiety issues that I manage myself, with a level of success that generally satisfies me. I have some OCD tendencies, but have so far avoided full blown OCD. I hope life never hands me something I can't cope with without losing it.
Oh, and I have pre-ventricular contractions, a heart condition which is the reason I don't consume more than minor amounts of caffeine. It's technically harmless, except for the pretty serious freak-out factor of your heart not working right (hearts go "thump thump" they do NOT go "thump *pause* thumpity thump thump", y'know?). But cutting out the caffeine has done wonders.

I think that's everything...remind me if I've forgotten something. Gotta go do the parenting thing.

Never mind, I checked myself. I forgot the pulsatile tinnitus ("whooshing" instead of "ringing")...it is sad that the thing that I have said multiple times could drive me to wanting to take an icepick to my head could get forgotten because I'm so used to living with it now.

And now I really gotta go.



(8 comments) - (Post a new comment)


[info]janetmiles
2007-09-12 09:51 pm UTC (link)
I hear you -- I have depression and chronic-pain-as-the-result-of-car-accidents.

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[info]jenny_evergreen
2007-09-12 09:55 pm UTC (link)
I got hit by a car when crossing the street in my early teens. Got a sprained neck out of it that never completely healed. Ah, life. :\

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[info]glinda_w
2007-09-13 12:54 am UTC (link)
CFS. Fibro. chronic daily intractable migraines. chronic bronchitis. peripheral neuropathy. (so of course depression. also anxiety stuff leading to panic attacks. and PTSD.)

wonder what I've forgotten to list? *wry*

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[info]jenny_evergreen
2007-09-13 12:13 pm UTC (link)
I forgot to mention my headaches (but I think they may be related to the BJHS, unless they're Chiari, like my sister and uncle.) *wry*

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[info]lotusbeans
2007-09-13 05:40 pm UTC (link)
I've got tinnitus too, and my friend who is an acupuncturist told me acupuncture is sometimes used to treat it. Haven't tried it yet though, but I'm definitely thinking about it.

Is there any chance you have fibromyalgia as well?

I'm sorry you have to deal with all this. I've got my own assortment of invisible illnesses and they come with their own set of issues and problems, don't they?

xoxo

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[info]jenny_evergreen
2007-09-13 08:57 pm UTC (link)
I've heard that. There's actually a possibility mine could be resolved surgically, but I had a doctor clash so I have to start over there. Maybe next year or something. Is yours regular or pulsatile?

I'm pretty sure I don't have fibro.

Yeah. Pain in the butt. Sometimes literally. :P

*hug*

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[info]guruwench
2007-09-13 11:50 pm UTC (link)
I hear you too - depression, hypoglycemia, asthma, some OCD tendencies (I counted stuff like crazy as a kid, still do occasionally), and I chronically have trouble with my iron levels. Oh, and the occasional migraine, plus the mild arthritis-like bits from injuries and broken bones.

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[info]jenny_evergreen
2007-09-14 12:33 am UTC (link)
I think I may be developing asthma. (My mother and sister both have it. So does Tom, but that's just coincidence. :P)
Blah.

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